Why Piggles Trust?
Harriet, our daughter was born with a serious congenital heart defect, which unfortunately was not diagnosed at birth, but at a year old. She had her first open heart surgery a couple of months later. This operation though successful required a second open heart surgery the following year. In between surgeries her appetite diminished, which is not uncommon for a child with her condition, consequently a feeding tube was inserted. Despite all this she was starting to thrive.
Twelve months ago she was struck down with a bacterial infection on her heart. She proved to be a complex and unique patient and really challenged the medical team treating her. She had severe adverse reactions to every antibiotic. Then she acquired a life threatening arrhythmia and we patiently waited 7 gruelling months in hospital for her to be at minimal risk for the defibrillator to be inserted. She came through this horrendous ordeal with flying colours.
In getting home just before Christmas Harriet enjoyed some long overdue and hugely cherished family time and got straight back into normal life, playing with friends, going on holiday, attending nursery and generally being a bossy little 4 year old.
In May 2016 Harriet suddenly fell ill and tragically died within hours. It was not heart related but thought to be an infection. Ultimately when the infection so aggressively took over, her heart was under too much pressure to be able to fight it.
The overwhelming shock that the family and friends are feeling is immense. To be taken in this way after everything she had been through is incomprehensible and so cruel. Her name and character will live on in Piggles Trust, a Charity set up to provide pre-school education to patients and their siblings in hospital.